Unique – Rare Chromosome Disorder Support Group

Unique’s mission is to inform, support and advocate for anyone affected by a rare chromosome or gene disorder and to raise public awareness. We aim to provide specialist information relating to many hundreds of different rare chromosome and gene disorders, to inform parents, carers and the professionals working with them. We support a network of families across the world living with rare chromosome or gene disorders, bringing them together both in person and virtually for invaluable mutual support. We aim to actively support, promote and participate in research, training, and policy activities that can improve the lives of our community.